Lupus Never Looked So Good

Now, upon seeing this my heart was broken and my mind blown.  But it makes all too much sense to me. Related:

• divorce rate among parents of Autistic children 23.5% (13.8% for parents of typically functioning childen)

Correlation?  Raising a child with any kind of special need is really effing difficult.  The constant worry, the constant cost, the lack of time for your own needs.  I can recognize all that.  This article, while eye opening, is missing a very big chunk of information that I bet will come with even bigger statistics, and that is the amount of chronically ill children who are emotionally abused.  Screamed at, berated, their complaints of pain or illness ignored, told to quit being babies, or that they are exaggerating. 

What this shows me is that there needs to be more attention paid to chronic illness!  Yes, AIDS and Cancer are terrible, and it’s easier for people to feel compelled to donate to something that kills.  But what about the diseases that live?  People who are trying to live full and happy lives but are burdened by constant illness?  We need more funding, more study, better representation in health insurance policy, and more support. 

Guys, I may be emotionally compromised right now.  I’m going to leave this here for you to read and maybe I’ll come back to it with more thought later. 

Many people with Lupus experience symptoms or flares that are triggered by ultra violet light.  Now, this article only speculates that Flourescent bulbs could pose a danger to those of us who experience Photo-sensitivity.  It’s likely possible, but I think right now I wouldn’t jump to throwing out all your flourescent bulbs.  Just be weary.  If you’re in your house and protecting yourself from the sun as normal but you are still experiencing symptoms, I would suggest then switching away from those light bulbs. 

I’m going to guess that unless you’re standing directly underneath one, or if you lay on top of them to keep warm, you’re probably going to be ok.  But if I hear anything further on this, I will update.

PLEASE, go talk to your doctors and ask them to include your case in the study.  We need to work together to come to results and answers to our many questions. 

There’s an option to make a donation in their name as well, but it’s totally optional!  If you can, I hope you will do it, but if you can’t the ecards are cute all by themselves.  <3 

Happy Valentines Day guys

Diana<3