March 2011
8 posts
8 tags
Alright, so I have some pet-peeves. I'm not...
I never claimed to be a doctor. I will never claim to be a doctor. But I know doctors well. I know the system well. My mother is a very successful nurse, I’ve worked in hospitals, I’ve worked for Disabilities agencies, and I’ve been living with Chronic Illness for 10 years. I’ve been around the block a few times when it comes to the health care universe. Which is why...
butterflyzz asked: My doctors are pretty shit! They are all like 'Yeah it probably this so we will give you a bladder op....Oh that didn't work? Hmm well we will give you a hysterectomy......Oh right didn't work either, Right ummmm, well you have Fibromyalgia!!!'
I have been admitted to hospital that many times it's crazy, my pain levels are ridiculous, I have this stupid UTI...
I have been admitted to hospital that many times it's crazy, my pain levels are ridiculous, I have this stupid UTI...
3 tags
6 tags
I'm now taking suggestions
Guys, I’m going to be hosting support groups at a few hospitals and libraries in my area soon. The concept I have down pretty well, it won’t be much different from the things I talk about here on my blog, just in person and with a little more of a sharing environment. So here’s where I’d like your help.
I’ve felt in the past when going to chronic illness related...
3 tags
It's never lupus...: Tried to post a comment on... →
uselesslupus:
I just wanted to raise some of the concerns I have with it like a few others have but it seems my comment hasn’t been approved. I don’t agree with the message the spoon theory promotes but I was still polite about it. I’m rather offended that they haven’t published my comment, it makes me wonder…
That’s what happened with me. My friends in college stumbled upon the...
8 tags
WatchAmazing TED talk about the development of….wait for it…..
Printable organs. More specifically, printable Kidneys. Long story short they use printer technology to place generated cells where they are needed to create organs. A boy featured in the talk was printed a bladder when he was 10 years old. And now he’s in college, living a fully functional life.
This technology is...
5 tags
Well, it's finally happening guys. The New lupus... →
It’s up for approval this week from the FDA. They say it should be approved by Thursday, and then for European patients later this year. This by no stretch of the imagination will make this drug available for you and I. The patent system is pretty messed up and it might take a long time for this drug to be affordable, or available to all Lupus patients. But it doesn’t matter.
All...
