To finally be seeing atheism-related posts popping up on my tumbler feed. =) Every little bit counts!
Lupus is not related to HIV/AIDS. In lupus, the immune system is overactive, while in HIV or AIDS, the immune system is underactive.
I think this is important, though I’ve never thought to mention it. I’ve, on several occasions, been given the *Oh holy shit* look from someone I’ve slept with because they did this in their head when I explained that Lupus was a:
To elaborate though, Lupus is often mistaken for AIDS, or HIV (or vice versa) since many symptoms overlap. But Lupus is NOT sexually transmitted.
And yes, that means I can’t give it to you so that you can understand me better, weird stalkerish-vibe guy who cared in a sweet but horribly creepy way from my 11th grade math class.
Hey guys, So I was not able to do a video last night because I got so incredibly sick and lost my voice like one hour after making the first video! Seriously, I don’t know if this is a very common thing among my fellow Chronically Awesome’s, but when I get sick I go from zero to plague in .08 seconds!
Anyway I’m starting to feel better so, as long as I still feel this way after work, I’m going to make a second video tonight. In the meantime, here’s what should have been yesterdays video broken down into a description.
[Crappy picture captured by iSight camera of me in a brown rocking chair, the loud hum of my macbook’s fan dominating the sound, while my senile cat meows insistently in the background. I’ve used iMovie to cleverly edit a non-related song into the background. Then I start to talk, trying really really hard not to overuse my hands (and slowly forgetting as the video goes along) and my giant anime eyes struggle to look at the iSight camera instead of the tiny box on the screen with my face in it. I say:
“Hey guys! So, here’s fact number two for May 2nd, day two of Lupus Awareness Month! Ok…so it’s less of a fact and more of an analyzed observation and some advice…but still! For those of you who do not have Lupus but know someone with Lupus, it can be easy to assume that if they are not currently in bed surrounded by a box of tissues or a vomit bucket that they are not sick. Sick, by the average healthy person’s definition is usually one of two things. Either a temporary sickness, like the flu or a virus. Or, an acute sickness, like Cancer or AIDS.
“Chronic Illness presents a different kind of illness to our understanding, wherein a person is constantly ill, with fluctuating degrees of symptoms, who will never fully recover, while death is not an immediate danger. So for those of you with friends who have Lupus- or any other Chronic Illness as well- be mindful that while they may act healthy on most days, they may just be feeling a lower gradient of symptoms in comparison to a worse day.
“I’m not suggesting that you treat your friend as though they are sick even when they are feeling relatively good, but, to keep it in mind that if your friend looks/acts fine but declines an invitation or suddenly seems disinterested in what you’re doing, it may not be because they don’t want to be around you or that they are actually disinterested.
“So I guess what I’m saying is, next time your friend, relative or significant other with Lupus or Chronic Illness seems healthy but acts otherwise, don’t jump to conclusions and maybe ask how they’re feeling.”
So then I’ll remind everyone about donating through the Lupus Foundation of America again and cut to some crappy image loosely associated with Lupus that I found on google images and fade out.]
Wheaton College, a conservative Christian college requires it’s students to attend these chapel messages. As a private religious school, they’re entitled to that. But, one of the more recent chapel messages dealt with sex and sexuality. At this meet, a former student of the college who is also gay spoke. And he told the students that while being gay was not a choice of their own, that it was a sign that they are broken, in need of redemption, and that anyone who is gay is to never break celibacy.
This person went on to share that in his 30’s, he is depressed and lonely due to the fact that he has chosen life-long celibacy, and that he constantly aches for a partner. And he is proud of himself, because he thinks his suffering will lead him to Christ.
In response to this message, an LGBTQ-straight alliance group comprised of Wheaton College alumni wrote a letter back to the students currently attending the college. The letter essentially said, “Hey, don’t worry about that garbage. You’re a person deserving of love just like anyone else.”
So the college writes a response to the letter from the LGBTQ community. And here’s the kicker…they state that they recognize that people are people no matter what they’re sexual orientation…But that they take pity on members of the LGBTQ community because they will have to stay celibate for life in order to be with God. The letter reinforces that being gay is a sin and a sign that we are broken.
And everyone is proud of the college! People generally see this as a step in the right direction! Really? You think I need to pat Christians on the back for finally admitting that gays are people who don’t deserve to be beat to death? No, this is 2011. If you still think that being gay is anything but normal, natural and worthy of equality, then you are the one that is broken.
It seems to be doing…okay.
So far, according to this article, it stands to help less than half of Lupus patients, and is having an extremely low success rate with black Lupus patients. And on top of that, they have no idea why. Alright, I’m willing to admit that some of my disappointment comes from the fact that I had my hopes far too high for this drug due the the “miracle drug” hype it got. I recognize that, but also I think the company was entirely misleading. They knew that their success rate was super low, but that was never made a part of their advertising.
Either way, it seems that interest in Lupus research has been on the rise, so perhaps Benlysta did a good thing in that way.
It may not be Lupus, as there are several other causes for photosensitivity. But if a few years have passed since you’ve been tested for anything I would go straight away! We know so much more about testing for these illnesses than we did even a few years ago.
Are you having other symptoms besides photosensitivity? Aches, fevers, upset stomachs, etc? Anything? I would sit down and think of the past 6 months any recurring symptoms you’ve noticed yourself having and write them all down. Then bring that with you to the doctor.