June 2011
23 posts
7 tags
I can't believe that they're still trying to paint... →
Ok, well I can actually believe it. But the truth of the matter is, Benlysta does ABSOLUTELY NOTHING for over half of the people who try it. And for a drug that costs about $35,000 a year per person…I’d say that’s something to be mentioned…loudly.
Let’s also remind people that the drug has helped ZERO black patients. Zero. Let me try to iterate this as poignantly...
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Vitamin D and Lupus/Chronic Illness
(BTW, I will eventually get around to all the major necessary Vitamins/Minerals but I want to start with those most frequently tied to Lupus because, well, this blog is about Lupus)
To start, Vitamin D, unlike Magnesium, is found in very few foods and is mostly absorbed through the sun’s rays. Which is why many people with Lupus often find themselves at a disadvantage in maintaining...
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cakesandhippyshakes asked: not really a question but...
thank you for your Magnesium and Lupus post this morning. I live for finding information on lupus and how to live with it. you're the best. <3
thank you for your Magnesium and Lupus post this morning. I live for finding information on lupus and how to live with it. you're the best. <3
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Cakes! doing the Hippie Shake!: way too eery... →
cakesandhippyshakes:
so, the doc called with my results. (gave my doctor permission to give me results over the phone because of my work schedule, I can’t make it to the office often… so the less pertinent stuff, he can just say over the phone)
anyways, he says my essentials were really low (calcium, magnesium,…
Wow that is such a great coincidence! If you need any advice on...
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Magnesium and Lupus/Chronic Illness
Magnesium is the fourth most abundant mineral in our bodies and is incredibly essential to our health. Not many people get the recommended daily value of magnesium, but at the same time it takes quite a lot before we start showing signs of deficiency. And our bodies will work extra hard to keep the stuff on supply. But for people with Lupus or other Chronic Illness, you may be more at risk.
...
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Your Nutritionista: 10 Exercises Myths that Won't... →
nutritionista:
I’m SO EXCITED someone finally put all of these in writing, together. Burn these into your brain, people. Apparently CNN.com asked exercise physiologists, trainers, and nutritionists about their most hated exercise myths, and their answers? Are ON POINT.
(via CNN, found via …
All of this is exceptional information for everyone, but I wanted to highlight #7 on the list...
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R.I.P. Dr. Kevorkian AKA Dr. Death
This amazing man took a pile of shit from the world for what he believed in. And what he believed in was a patients right to die with dignity. His medical license was revoked and he spent 8 years in jail for the 130 patients he assisted. As his practice was largely unheard of at this time, his methods were sometimes flawed. He wrote that each patient MUST meet with a psychiatrist to determine...
“If you had to pick a cancer, you picked the best one to have.”
– My oncologist when I was diagnosed.
Awful thing to say to someone at the diagnosis.
(via thechemocowgirl)
lmao mine said that too!
(via christineetoo)
So did mine, LOL.
(via cohenstr)
Mine didn’t, I feel left out now
(via andfakethewayiholdyou)
I don’t know how to express what a tool...
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I like how today's Tumblr is yesterday's Reddit.
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New test for Lupus? →
I think if we could actually get a more straightforward test for Lupus and cut diagnosis time by a large chunk, shit would be so much nicer. Most people don’t know what illness they have for years, and some people don’t even know what to test for or ignore their symptoms completely. This is a good step, should it work out.
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Oh swell, this is just what we need. Do I need to... →
I get that the article is trying to suggest that the fellow in question was under a lot of stress due to his illness and that may have contributed to his actions…well…I guess that sort of, kind of makes sense…It’s ok.
It’s not okay. Mentioning that he had Lupus was entirely irrelevant to the fact that this man had a lapse in sanity that caused him to murder. This...
8 tags
We're unlocking more and more about Lupus every... →
You know that feeling that you know the answer to something, or the name of something. It’s right on the tip of your tongue but you can’t seem to find the word and say it out loud? That’s how I feel about the cure for Lupus. Almost.
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Vitamin and mineral deficiencies associate with... →
The article is definitely a good read, but I’d like to take it a step further. There are certain things that we know to be true. For instance, we know that people with chronic illness tend to see deficiencies pop up (for people with Lupus, it’s most often Vitamin D and B12, but could also be plenty others). We also know that deficiencies like this lead to an onset or worsening of...
inxreverence asked: It has been a little while since you answered my question, but I just wanted to reply to what you had to say to read some more of your imput.
Yes, I have aches. In almost all of my joints. My stomach seems to bother me a lot more than it should and I suffer from exhaustion, anxiety and depression. My feet are red all if the time and I have a bad memory. Maybe my anxiety gets the...
Yes, I have aches. In almost all of my joints. My stomach seems to bother me a lot more than it should and I suffer from exhaustion, anxiety and depression. My feet are red all if the time and I have a bad memory. Maybe my anxiety gets the...
