Lupus Never Looked So Good

We all know my reservations with the Spoon Theory, and if you don’t, then check this.

Now that that’s out of the way, I can appreciate what Spoon Theory tried to do.  That is, illustrating how confusing it might be to get someone to understand what you’re going through, and how the concept of being Chronically Ill is a little bit different than most people’s idea of “sick”.  That in and of itself is not a bad message, but Spoon Theory has become almost cult.  With everyone calling themselves “spoonies” and

1.  sounding ridiculous

2.  perpetuating the pity-party that the Spoon Theory promotes

Spoon Theory has had it’s time.  Why don’t we create something new?  Something that we can do collectively.  Something that will really represent how strong we all are, while still remaining informative to our healthy counterparts.

So why don’t you guys send me in a story, or a paragraph, or even a sentence or two telling me how you explain/explained your illness to someone you care about. 

1.  It doesn’t matter if your story is sensational or perhaps boring and clinical.  Send it.

2.  It doesn’t matter what your illness is, as long as it’s labeled as “chronic”.  Not that I wouldn’t love to hear other stories about other sickness, but for the purposes of explaining “chronic” illness…

So you can reply to this, or send it to my ASK.  And then, what I am hoping, is that somewhere between all those stories we can meld together a neat, catchy, informative and strong message.  Maybe with permission of whatthejules, we can slap it up under Chronically Awesome, or publish a new website.  Anyway, let’s see what we can do! 

So, what’s your story?