Lupus Never Looked So Good - Hey, my name is Michelle and I, too, suffer from SLE, Fibro, Raynauds and a few gi issues. I am 28 years old and have been diagnosed for almost 3 years now. I LOVE your viewpoint of things and have read most of your entries after reading about the back-lash to your disgust in the spoon theory. You know what, I agree with you. I have had severe flares where I wanted to stay in bed but I got out of bed because I knew staying bed would only intensify a negative mental state towards this illness. You can’t exactly fight while laying down. I am a mom with two young kids and I fight for them and for myself. You are right, we are strong. We should celebrate the fact that we put up with so much bs with this disease but we keep on kicking it. I am part of an on-line SLE support group and my stance is that I am more than a diagnosis. I wish more women shared my sentiment. Btw, I am also from NYC so I can relate to your mindset while others want to criticize. I wanted to respond to something you wrote in your post about what causes lupus. While I was born in Brooklyn, my parents moved us to Staten Island when I was 4. We lived within two miles of the dump and I question what effect did it have on me. Another interesting tidbit is a lot of people I know who lived in my neighborhood have developed some sort of auto-immune disease. One friend has APS, which caused her to miscarry several times before it was diagnosed. Her mother developed psoriasis after moving to Staten Island from Queens. Another friend has severe psoriatic arthritis and her adoptive father died after a long battle with scleroderma. Asthma was also prevalent in this neighborhood. The news covered the cancer rates but never focused on the outcropping of auto-immune diseases on Staten Island. I do have lupus in my family tree (my aunt died from complications after a 40 year battle) so I do believe it’s a combination of genetic and environment that factor in it’s development. Thank you for reading this post. Keep on fighting the good fight and I do thoroughly enjoy your blog! Michelle :)

All my spoons are in all the right places, if you know what I'm talkin' about...

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Hey, my name is Michelle and I, too, suffer from SLE, Fibro, Raynauds and a few gi issues. I am 28 years old and have been diagnosed for almost 3 years now. I LOVE your viewpoint of things and have read most of your entries after reading about the back-lash to your disgust in the spoon theory. You know what, I agree with you. I have had severe flares where I wanted to stay in bed but I got out of bed because I knew staying bed would only intensify a negative mental state towards this illness. You can't exactly fight while laying down. I am a mom with two young kids and I fight for them and for myself. You are right, we are strong. We should celebrate the fact that we put up with so much bs with this disease but we keep on kicking it. I am part of an on-line SLE support group and my stance is that I am more than a diagnosis. I wish more women shared my sentiment.

Btw, I am also from NYC so I can relate to your mindset while others want to criticize.

I wanted to respond to something you wrote in your post about what causes lupus. While I was born in Brooklyn, my parents moved us to Staten Island when I was 4. We lived within two miles of the dump and I question what effect did it have on me. Another interesting tidbit is a lot of people I know who lived in my neighborhood have developed some sort of auto-immune disease. One friend has APS, which caused her to miscarry several times before it was diagnosed. Her mother developed psoriasis after moving to Staten Island from Queens. Another friend has severe psoriatic arthritis and her adoptive father died after a long battle with scleroderma. Asthma was also prevalent in this neighborhood. The news covered the cancer rates but never focused on the outcropping of auto-immune diseases on Staten Island.

I do have lupus in my family tree (my aunt died from complications after a 40 year battle) so I do believe it's a combination of genetic and environment that factor in it's development.

Thank you for reading this post. Keep on fighting the good fight and I do thoroughly enjoy your blog!

Michelle :)

Wow, thank you so much for writing me! I’m so glad to see more women (and men) with Lupus fighting to live their lives as if Lupus wasn’t an issue while still having to overcome those extra struggles!

As for genetics and Lupus, I think what we might find out (and I can’t say this for sure) is that autoimmune deficiencies in general might be hereditary, while the specifics might be determined by environment. For example, no one in my family has ever had Lupus, but a few generations back there is Rheumatoid Arthritis, and Lymes. So, maybe the predisposition for a fragile or overactive immune system runs in families but the specific manifestation is determinate upon environmental factors. I hope we find out soon!

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