All my spoons are in all the right places, if you know what I'm talkin' about...
Catching Elephant is a theme by Andy Taylor
So I’ve been on Tumblr just about a month and a half now, and I’ve posted…a lot. So I was thinking, maybe once a month I’ll post a highlight. Sift through some of the sillier posts and compile all the major things I talked about the last 30 days. So this will be my first one of those.
FIRST I wanna remind you all to KEEP SENDING ME STORIES! I have some great ones in my ASK and reply boxes already, but I want this to be as collaborative as possible!
1. Spoon Theory Garbage: Why I think we need a more positive story in our community, and why I don’t think Spoon Theory is healthy.
2. Depression and Anxiety: The importance of paying attention to your feelings and taking care of your mental health.
3. Benlysta, the new Lupus drug: A good link about the drug, and my thoughts on the positivity of its development.
4. Lady Gaga does NOT have Lupus: The media used her story to spread misconceptions and sometimes blatant lies about what Lupus is.
5. Don’t be a slactivist!: quit changing your facebook picture to cartoon characters and donate or volunteer! And if money is tight donate some used crap!
6. Reflexology, Meditation, Holistic treatments!: They DO help sometimes. It’s not all hokey voodoo magic!
7. Some posts on specific Lupus symptoms: Raynaud’s Phenomenon (reblogged from fuckyeahmedicalstuff, with my added anecdote), Alopecia, Thin Blood, Photosensitivity, Gluten Intolerance
8. A tool to detect UV intensity, thanks to Thinkgeek.com
9. Dating and Lupus: My advice to anyone with Chronic Illness regarding dating and life!
10. STATISTICS: A compilation of all the scattered Lupus-related statistics out there, neatly packaged so you can know your stuff and spread awareness!
11. What causes Lupus?: All the controversies explained from my point of view.
12. A simple etymology of “Lupus”, followed by my explanation for why our mascot ought to be a wolf instead of a butterfly =)
13: LGBT, domestic violence, rape, chronic illness, sexism, mental illness, racism: Holy Hell people, we need to stick together
So please, just stop.
Did anyone even hear the interview she gave? I’m sick of reading about how she’s our “hero” for being so strong, and for being in the limelight with such a life-threatening illness. I love Lady Gaga, she’s a cool cat. But the interview went like this. Larry King asked her if she had Lupus. She said NO. It runs in her family, but she has no symptoms. She was diagnosed as borderline positive. That means she doesn’t have it. She’s at higher risk to get it if she doesn’t take care of herself, but she does not have Lupus.
Some people are glad that she said anything in the interview, because it brought attention to Lupus. On one hand, yes. And that is nice. But she didn’t exactly bring it up, or go into it. She wanted to keep it private, which is understandable. On the other hand, look at the attention it brought. All I’ve seen on regards to the subject is misinformation about what Lupus is, what her diagnosis meant, and a whole lot of swooning over how amazing Lady Gaga is.
A Doctor even went on the Early Show and basically made Lupus sound like a slice of pie. When listing four of the MANY symptoms of lupus she said “…Extreme fatigue, which, let’s face it, we all get that sometimes.” (Not to mention she gave incorrect information about getting Lupus, but that’s a whole other argument.)
For real facts on diagnosing Lupus that don’t involve scaring the public (if you’re tired or have join pain occasionally, you probably have LUPUS!!!!! AHHHHH) can be found here.
Essentially, she said the word Lupus on air. She doesn’t have Lupus.
Is the only one I’ve seen that has it right, and doesn’t make me want to throw up.