All my spoons are in all the right places, if you know what I'm talkin' about...
Catching Elephant is a theme by Andy Taylor
Highlights for January/February 2010
So I’ve been on Tumblr just about a month and a half now, and I’ve posted…a lot. So I was thinking, maybe once a month I’ll post a highlight. Sift through some of the sillier posts and compile all the major things I talked about the last 30 days. So this will be my first one of those.
FIRST I wanna remind you all to KEEP SENDING ME STORIES! I have some great ones in my ASK and reply boxes already, but I want this to be as collaborative as possible!
1. Spoon Theory Garbage: Why I think we need a more positive story in our community, and why I don’t think Spoon Theory is healthy.
2. Depression and Anxiety: The importance of paying attention to your feelings and taking care of your mental health.
3. Benlysta, the new Lupus drug: A good link about the drug, and my thoughts on the positivity of its development.
4. Lady Gaga does NOT have Lupus: The media used her story to spread misconceptions and sometimes blatant lies about what Lupus is.
5. Don’t be a slactivist!: quit changing your facebook picture to cartoon characters and donate or volunteer! And if money is tight donate some used crap!
6. Reflexology, Meditation, Holistic treatments!: They DO help sometimes. It’s not all hokey voodoo magic!
7. Some posts on specific Lupus symptoms: Raynaud’s Phenomenon (reblogged from fuckyeahmedicalstuff, with my added anecdote), Alopecia, Thin Blood, Photosensitivity, Gluten Intolerance
8. A tool to detect UV intensity, thanks to Thinkgeek.com
9. Dating and Lupus: My advice to anyone with Chronic Illness regarding dating and life!
10. STATISTICS: A compilation of all the scattered Lupus-related statistics out there, neatly packaged so you can know your stuff and spread awareness!
11. What causes Lupus?: All the controversies explained from my point of view.
12. A simple etymology of “Lupus”, followed by my explanation for why our mascot ought to be a wolf instead of a butterfly =)
13: LGBT, domestic violence, rape, chronic illness, sexism, mental illness, racism: Holy Hell people, we need to stick together
- # SLE
- # RA
- # Raynauds
- # photosensitivity
- # etymology
- # Lupus
- # Alopecia
- # hair loss
- # chronic illness
- # LGBT
- # Spoon Theory
- # spoonies
- # spoonie
- # depression
- # anxiety
- # mental illness
- # mental health
- # benlysta
- # Lady gaga
- # reflexology
- # meditation
- # Gluten
- # valentines day
- # racism
- # sexism
- # slactivism
- # donate
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Lupus: The Name…
ALSO: WEREWOLVES.
I personally love it. The disease? Not a picnic. The name? Cool as Hell. The name for the disease is said to have originated somewhere in the 1400’s (either by Paracelsus or Giovanni Manardi). Apparently they thought that the degenerative tissue scars resembled the bite of a hungry wolf. I love how our minds associate things.
So the word Lupus means wolf in Latin, right? Any 12 year old who’s seen Harry Potter could probably figure out that connection thanks to Professor Lupin, who is revealed to be a werewolf.
Here’s my favorite part of the whole Etymology of lupus. Wolves have always been associated with the moon, the nighttime, the darkness. They were thought to perhaps even be praising the moon by Native Americans. It is Lupus (and also another disease with similar symptoms called porphyria) that are believed to have given way to folklore of Vampires and Werewolves. They saw these rare people avoiding the sun, becoming ill in the presence of sunlight, and the legends begin!
