So, people who know me personally know I’m kind of big on the bucket list thing. I have my own, and it’s not so much a traditional bucket list (things you want to accomplish before you kick the bucket) but more like a list of things I want to accomplish while I’m still capable.
Lupus is one of those strange diseases, it doesn’t go away, but no one ever gives you a death-clock either. Sure, I’m at a high stroke risk so I *could* throw one in my sleep and kick it. But I’d never know that, would I? Then again, I could live to be 60, but it would probably not be a very pretty looking 60. I could also go totally off the map and be the healthiest 89 year old you’ve ever met someday. Though, my money definitely lies somewhere between the first two options.
With Lupus, it’s not that you never know when you’re gonna “kick it”, it’s that you never know when your body will stop recovering from the bad days. In your travels for support, you wind up meeting people with your disease who have had it longer, later in life. You see into your own future, and that can be daunting. So my list (currently still accumulating), is more of a list of things I want to do to make sure I’ve got no regrets if I ever find myself completely unable.
I’m not going to share my whole list here because, well, it’s too long and there’s some things on it that aren’t PG and my family reads this. But I also decided to add the Lifescouts badges to my list for fun. For those who don’t know, Lifescouts is a project started by Alex Day, a youtuber in England. The project is obviously mimicking the concept of scouting, but for real world experiences and achievements. I’m going through them now to see which ones I’ve already got on my make-believe sash, and hopefully I’ll try for more of them as the year goes on.